The chronic neurologic disorder that impacts the brain's ability to regulate sleep and wake cycles. Patients suffering from narcolepsy suffer from excessive nighttime sleepiness, sudden attacks and, sometimes cataplexy (a rapid decrease in muscle control caused by intense emotional states).
If you have a friend or family member who suffers from narcolepsy or other disorders, understanding the condition and how you can help the person with the condition could make a big improvement in their living. In this post we'll cover:
The Narcolepsy Psychiatric Disorders
How do you support someone who has Narcolepsy
Medicines to treat Narcolepsy
Lifestyle Adjustments to Improve Management
Why you should seek professional Support
Understanding Narcolepsy
Narcolepsy goes beyond being tired during the day. It's an illness of the brain that is due to the body's lack of ability to manage sleep. There are two kinds of the disorder:
Typ 1 Narcolepsy (with cataplexy) - Includes excessive morning sleepiness, and abrupt muscle weakness that is triggered by emotional.
Typ 2. Narcolepsy (without cataplexy) - Involves excessive tiredness, but not muscle weakness.
The most common symptoms are:
Excessive Daytime sleepiness (EDS) - Persistent sleepiness even after a long night's sleeping.
Sleep Attacks Uncontrollable, sudden desires to fall asleep.
Cataplexy Temporary losing motor control (e.g. speech slurred and knees that buckle, or collapse).
Sleep paralysis The inability to talk or move while sleeping or getting up.
Hypnagogic/Hypnopompic Hallucinations - Vivid, dream-like experiences when falling asleep or waking.
How to Support Someone with Narcolepsy
Narcolepsy is difficult, but with your help will help manage their symptoms in a better way. Here's how:
Be Patient Understanding
It is important to recognize that sleepiness isn't a sign of laziness, it's a medical issue.
Do not make your children feel guilty about needing to rest or napping.
Help them Keep safe
If they are driving, help them to stop for breaks, or to avoid driving if they're tired.
If they suffer from cataplexy and cataplexy symptoms, they should are in a secure place to lie or sit throughout periods of.
Create a Sleep-Friendly Schedule
Encourage them to adhere to a consistent sleep routine (consistent sleep time and wake-up times).
It is suggested to take short, planned nap times (10-20 minutes) to help you manage your morning sleepiness.
Give emotional support
The condition of narcolepsy is often lonely. Be attentive to their experiences without judgement.
Invite people to join the support group (e.g. the Narcolepsy Network).
Medications for Narcolepsy
Although there isn't a cure for narcolepsy but medications are able to help treat symptoms. The most common treatments are:
Stimulants (For excessive daytime sleepiness)
Modafinil (Modalert 200mg) - Promotes awakeness without the highs or crash of other stimulants.
Armodafinil (Nuvigil) Similar to modafinil but with a longer duration.
Methylphenidate (Ritalin) Amphetamines (Adderall) - Used for more serious cases However, they have a higher risk of abuse.
Antidepressants (For Cataplexy)
Venlafaxine (Effexor) - Helps decrease cataplexy-related episodes.
Fluoxetine (Prozac) Sertraline (Zoloft) - May aid in reducing emotional triggers.
Sodium Oxybate (Xyrem/Xywav)
A potent sedative to take during the night time to increase sleeping patterns at night, and to reduce cataplexy and sleepiness.
The latest treatments
Pitolisant (Wakix) - A non-stimulant wakefulness-promoting drug.
Solriamfetol (Sunosi) - Helps improve alertness.
Always seek the advice of a doctor prior to starting or altering medications.
Lifestyle Adjustments for Better Management
Lifestyle changes are essential:
The Sleep Hygiene
Keep a quiet, dark and cool sleep environment.
Do not drink or eat a large meal prior to going to bed.
Scheduled Naps
Short naps (10-20 minutes) can help recharge energy.
Regular Exercise
Physical activity can improve general energy levels and sleep levels.
Balanced Diet
Do not eat foods with sugary ingredients that trigger crashes in energy levels.
Consume protein-rich food to maintain the energy level.
Stress Management
The stress can exacerbate the symptoms. It is important to practice relaxation methods such as meditation, yoga or even yoga.
When to Seek Professional Help
If you suspect that your loved ones' symptoms become more severe or disrupt your daily routine, you should consult with a sleep expert. They might suggest:
An polysomnogram (sleep test) to confirm diagnosis.
Treatment or medication adjustments.
Final Thoughts
The care of someone suffering from narcolepsy demands patience, understanding and preventive care. In helping them comply with the medical guidelines, ensuring they have good habits and providing emotional assistance, you will dramatically enhance their lives.
If you suspect the presence of narcolepsy urge them to visit an expert for a appropriate diagnostics and treatments. When you approach it correctly the people suffering from narcolepsy will be able to live fulfilling and productive lives.
Are you or someone you know suffer from Narcolepsy? Please share your stories or advice in the comments section below!